Disclaimer:  This data was compiled from various unconfirmed sources.  You will need to independently deterrmine if any of these individuals is qualified for your specific condition.   No endorsement or personal knowledge of the capabilities of any physician is claimed or implied.  - Leon Roomberg 5-22-2002, Revised 2-20-2006
Please email me with additions, corrections, and deletions!

EDS Specialists

Scooter Rentals and Medical Devices
Jouni Uitto, MD, PhD   
Director of Jefferson Institute of Molecular Medicine. Dr. Uitto is a dermatologist and an established authority in the field of connective tissue biology.  

Bluemle Life Sciences Building,
233 South 10th Street, Suite 450
Philadelphia, PA 19107
Phone: 215-503-5785
FAX: 215-503-5788
 

 

Mrs. Lisa Jay Kessler, MS (Genetics Counselor)
Dr. Reed Pyeritz, MD, PhD,    Chief of Medical Genetics
University Of Pennsylvania Health System
Department of Medical Genetics/Division of Medicine
#1 Maloney Building
215-662-4740
 

 For scooter rentals delivered to and picked up from Jacob Javits
Convention Center: ($200 pwer week)
The Medicine Shoppe  Phone 212.645.7981
306 8th Avenue, NYC  NY  10001

Dr. Harold D. Schoenhause, (Foot Specialist )
Graduate Hospital
18& Lombard Street
215-546-1618    Office
 

New York City Scooter Rentals

 ScootAround T: (888) 441-7575 Wheelchair and scooter rentals. Seven days a week, 24 hours a day.

Falk Drug and Surgical Supply 259 E 72nd St New York, NY, 10021 Tel: 212-744-8080 Fax: 212-737-1521

DMC USA 213 W 35th St New York, NY 10001-1903 Phone:(212)777-7167

Charles L. Nelson, MD ( Ortho Lower Extremities - Legs)
University of Penn Health System/ Presbyterian
3400 Spruce Street, #2 Silverstein Building
215-662-3340
 

Dr. Paige Kaplan, MD.  
(EDS Physician for Pediatrics.)
Children's Hospital of Philadelphia
Division of Human Genetics
 

Ms. Nicole L. Gergich, M. P. T.
Penn Therapy & Fitness  (Physical therapist)
3624 Market Street
215-349-5585
 

 

Kevin Dolan, MD. (Pain Management)
University of Penn Health System/ Presbyterian
39& Market Street Suite, #140 Medical Office Building
215-662-8640
 

 

David J. Bozentka, MD (Ortho Upper Extremities - Hands & Arms)
University of Penn Health Sys/ Presbyterian Hospital
Penn Orthopedic Institute    
39th & Market Street,  #1 Cupp Pavilion
215-662-3340   
 

 

U.K.:
Anton Barabas, (Vascular Surgeon)
West Suffolk Hospital
Bury St Edmunds
West Suffolk Hospitals NHS Trust
A Cambridge University Teaching Hospitals Trust
West Suffolk Hospital
Hardwick Lane, Bury St Edmunds,  
Suffolk IP33 2QZ,
Tel: 01284 713000
 

 

 

 

 EDS Dental Notes

 

Facilities rumored to have EDS-specialists on staff: (In addition those above)
University of Florida in Gainseville at Shands
Mass. General (Boston) Rheumatology Clinc
Glasgow Hypermobility Clinic (UK) 

 

Link to Geneticist & EDS Expert Mike Pope
UK expert at Leeds University: Prof. Bird   Also: Prof. Grahame at Guys  
(both nearing retirement)